The Dravet Syndrome Foundation Spain (FSD)is delighted to announce and invite you to participate in our upcoming conferences taking place in Madrid (Spain) in 2022, whose registration is now open at www.dravetconference.com.
⚕️ Dravet Syndrome Conference 2022 – Thursday, March 31, 2022
This international conference brings together a range of professionals from all over the world committed to improving the lives of people with epilepsy, including clinicians, investigators and professionals from the pharmaceutical industry. Running in English, this event aims to update professionals on diagnosis, management, available treatments, and therapies in development and to create an ideal platform for discussion and exchange.
The Dravet Syndrome Conference 2022 will be held at the Great Amphitheatre of the Illustrious Official College of Physicians of Madrid.
🧬 European Dravet Syndrome Advanced Therapies (EDSAT) 2022 – Friday, April 1, 2022
At EDSAT2022, scientists will share their most recent advances in ATMPs for Dravet syndrome, and they will learn from and discuss with key researchers, industry, and clinical and regulatory experts in product development.
This European scientific workshop, which will take place in English, has received partial funding from the European Joint Programme on Rare Diseases (EJP RD) and will offer travel grants, will be held at the Gregorio Marañón lecture hall of the Illustrious Official College of Physicians of Madrid.
👪 FSD Family Meeting 2022 – Saturday, April 2, 2022
Held at the Rafaela Ybarra School, this meeting brings together Dravet syndrome patients and their families from all over Spain. It provides an excellent opportunity for families to exchange their experiences, concerns, queries and hopes with other families and health and social care providers. It also provides them with first-hand information about the progress made by DSFS and the most recent advances in Dravet research, as well as some of the most relevant social developments. This meeting will be in Spanish.
FSD is a non-profit organization that promotes, encourages, and connects the world’s leading research centers for Dravet syndrome and related diseases. It is based on the principle of collaboration: a model uniting patients, investigators, clinicians, regulators and pharmaceutical companies in the search for an effective therapy. Our main goal is to remove the barriers that prevent Dravet syndrome research from advancing, and to find effective therapies that will mitigate and even cure the disease.
How can you participate in our conferences?
👉 Join one, two or the three of our events in Madrid and meet the world leading experts in Dravet syndrome and related health and scientific fields by simply registering at www.dravetconference.com, AND/OR
👉Become a sponsor of one, two or the three of our events by applying for one of our sponsoring package benefits whilst getting recognized as a key supporter of the Dravet Syndrome Conferences 2022 in Spain. To learn more, contact us at [email protected].
Nuevos modelos 3D para entender el síndrome de Dravet en la reunión del EDSAT
Clara Zourray, estudiante de doctorado en UCL, nos desvela un modelo 3D que replica el síndrome de Dravet.