III Carrera RetoDravet, por el Síndrome de Dravet

Cuándo y dónde: Domingo 15 de marzo de 2026 en Madrid

¡Bienvenido/a a la III Carrera Solidaria RetoDravet, por el Síndrome de Dravet!

¿Listo/a para correr por una causa que cambia vidas? ¡Únete al movimiento RetoDravet!

Te invitamos a participar en la III Carrera Solidaria RetoDravet, un evento deportivo y solidario que tendrá lugar el domingo 15 de marzo de 2026 en el vibrante barrio de Hortaleza, Madrid, con salida junto a la Junta de Compensación de Valdebebas y el Cercanías. Este año volvemos con más ilusión que nunca, consolidando la distancia de 15k y manteniendo opciones para todos los niveles.

Correr esta prueba es mucho más que una carrera: es una oportunidad para apoyar a los guerreros y familias que conviven con el síndrome de Dravet, una enfermedad rara que provoca crisis epilépticas graves, dificultades cognitivas, motoras y un impacto profundo en sus vidas. Cada zancada que des ayudará a financiar la investigación para encontrar una cura y a mejorar la calidad de vida de quienes luchan contra esta enfermedad. ¡Tu esfuerzo cuenta!

¿Cómo puedes unirte al reto?

Es muy sencillo. Elige tu distancia favorita: 15k, 10k, 5k, la marcha no competitiva o las pruebas infantiles para los más pequeños. Inscríbete a través de nuestra página web antes del 12 de marzo de 2026 o hasta agotar dorsales. Los precios son:

15k, 10k y 5k:

  • 10 € (hasta 31/12/2025)
  • 11 € (hasta 31/01/2026)
  • 13 € (hasta 15/02/2026)
  • 15 € (hasta 12/03/2026)

Marcha no competitiva:

  • 9 € (hasta 31/12/2025)
  • 10 € (hasta 12/03/2026)

Carreras infantiles:

  • 5 € (hasta 31/12/2025)
  • 6 € (hasta 12/03/2026)

Dorsal solidario: desde 6 €, para apoyar la causa si no puedes asistir.

Con tu inscripción, recibirás una camiseta técnica, una bolsa del corredor llena de sorpresas y la satisfacción de contribuir a una causa increíble. Además, los primeros clasificados en cada categoría se llevarán un trofeo, y los peques de las pruebas infantiles recibirán medallas.

¿Qué hace especial a RetoDravet?

No es solo una carrera, ¡es una fiesta solidaria! Disfruta de un ambiente familiar lleno de música, animación, sorteos y actividades paralelas. El recorrido por las calles de Valdebebas te desafiará con su nivel medio-alto de dureza, pero contarás con avituallamiento, asistencia sanitaria y control de tiempos para que solo te preocupes por disfrutar.

Consulta el horario y el mapa del recorrido en nuestra web: www.carreraretodravet.com.

¿Por qué no puedes faltar?

Correr en la III Carrera Solidaria RetoDravet es una forma de cuidarte, divertirte y, sobre todo, marcar la diferencia. Cada paso que des es un mensaje de esperanza para los guerreros con síndrome de Dravet y sus familias. Forma parte de esta comunidad de corredores solidarios que crece edición tras edición, comparte risas, esfuerzo y momentos inolvidables, ¡y juntos hagamos que el RetoDravet siga avanzando imparable!

Inscríbete ya, ponte las zapatillas y ven a darlo todo por una causa que lo merece. ¡Te esperamos el 15 de marzo para correr, sonreír y cambiar vidas!

Reglamento

La III Carrera RetoDravet, por el Síndrome de Dravet, XV Carrera Popular de Hortaleza, se celebrará el domingo 15 de marzo de 2026 en Hortaleza (Madrid) a partir de las 09:00 h y estará organizada por la Fundación Síndrome de Dravet, con la organización técnica por parte de Eventsthinker. La salida será junto a la Junta de Compensación de Valdebebas y el Cercanías.

ARTÍCULO 2. PARTICIPACIÓN

Podrán tomar parte en esta prueba todas aquellas personas que lo deseen, siempre y cuando estén correctamente inscritas, tanto en tiempo como en forma, y hasta un máximo de 2000 corredores.

ARTÍCULO 3. DISTANCIA Y RECORRIDO

La prueba se disputará sobre un recorrido de 15k, 10k y 5k totalmente urbanos, por las calles alrededor del parque de Valdebebas. La salida será junto a la Junta de Compensación de Valdebebas y el Cercanías. Con nivel medio-alto de dureza.

También habrá marcha no competitiva para aquellos que quieran participar pero no puedan correr, así como pruebas infantiles.

ARTÍCULO 4. CATEGORÍAS

Se establecen las siguientes categorías para ambas distancias (15k, 10k y 5k):

Absoluta: Recibirán trofeo los tres primeros hombres y las tres primeras mujeres.
Veteranos/as: Recibirán trofeo los tres primeros hombres y las tres primeras mujeres que lleguen a meta nacidos en el año 1975 o anteriores.

Antes de la subida al pódium los clasificados deberán acreditar su edad con documento oficial (DNI; pasaporte, libro de familia, etc…). La no presencia implica la renuncia al trofeo.

ARTÍCULO 5. INSCRIPCIONES

Desde el 14 de diciembre hasta el 12 de marzo de 2026 a las 21:00 horas, o hasta agotar los 2000 dorsales disponibles para la carrera. El precio es:

Prueba de 5k, 10k y 15k:

10 € hasta el 31/12/2025
11 € hasta el 31/01/2026
13 € hasta el 15/02/2025
15 € hasta el 12/03/2026 a las 21:00 horas

Marcha no competitiva:

9 € hasta el 31/12/2025
10 € hasta el 12/03/2026 a las 21:00 horas

Carreras Infantiles:

5 € hasta el 31/12/2025
6 € hasta el 12/03/2026 a las 21:00 horas

Para cuestiones relativas a inscripciones mandar un correo electrónico a [email protected].

En las pruebas infantiles, habrá 3 distancias no competitivas y medallas para todos.

CATEGORÍAAÑOSDISTANCIA
Niños acompañadoscualquier edad100 m
Benjamín5-6 años200 m
Alevín7-8 años400 m
Infantila partir de 9 años1.0 km


ARTÍCULO 6. RETIRADA DEL DORSAL/CHIP

La entrega de dorsales tendrá lugar en la sección de Deportes de El Corte Inglés Sanchinarro, situado en la planta 3, el sábado día 14 de marzo de 11:00 a 18:00 horas.

No habrá entrega de dorsales el día de la carrera, con excepción de que se contrate el servicio correspondiente.

ARTÍCULO 7. DEVOLUCIONES

No se devolverá la inscripción una vez realizada.

Ante inclemencias climatológicas extraordinarias o causas de fuerza mayor no atribuibles a la organización y que imposibiliten la celebración de la prueba, la organización no asumirá ninguna responsabilidad y no se realizará devolución del importe de la inscripción.

Solo se podrá ceder el dorsal a otra persona por causa debidamente justificada y hasta una semana antes de la carrera.

ARTÍCULO 8. ASISTENCIA MÉDICA

La Organización contará con un servicio médico, desde media hora antes del inicio y hasta media hora después de la finalización. La prueba cuenta con un Seguro de Responsabilidad Civil y un Seguro de Accidente. La participación en el evento está bajo la responsabilidad y propio riesgo de los participantes. Todo participante debe estar en perfecto estado de salud para la práctica de la prueba a la que se ha apuntado. Con la inscripción aceptan este Reglamento y descargan a la Organización de cualquier responsabilidad en cuanto a Salud del participante se refiere.

ARTÍCULO 9. CAMBIOS

La organización se reserva el derecho a realizar cualquier cambio por necesidades organizativas o por el beneficio de los participantes, debiendo comunicarlo a los mismos con la mayor antelación posible.

Además podrá suspender y aplazar la prueba si se observa un riesgo para la seguridad de los participantes, por causa de fuerza mayor, por condiciones meteorológicas extremas que lo desaconseje, cualquier modificación se notificara debidamente.

ARTÍCULO 10. CLASIFICACIONES

La clasificación general oficiosa se publicará al día siguiente de la carrera en la página web https://www.carreraretodravet.com

ARTÍCULO 11. DESCALIFICACIONES

El servicio médico de la competición y/o los jueces árbitros están facultados para retirar durante la prueba:

No está permitido participar sin camiseta.

Participar con un dorsal asignado a otro participante o no autorizado por la Organización.

Realizar la inscripción con los datos alterados.

No auxiliar o socorrer a otro participante que se encuentre en peligro o accidentado.

Realizar cualquier acción voluntaria que pueda dañar el entorno natural.

Arrojar cualquier desperdicio durante el recorrido, fuera de los depósitos previstos por la organización.

Comportamiento no deportivo o no respetuoso con participantes, organizadores, colaboradores, jueces y público.

Cualquier otro motivo no reflejado entre los puntos anteriores que se considere punible de sanción por el Jurado de la prueba, compuesto por dos miembros de la organización.

ARTÍCULO 12. VEHÍCULOS

Los únicos vehículos autorizados a seguir la prueba son los designados por la Organización. Queda totalmente prohibido seguir a los corredores en coche, moto o bicicleta, por el peligro que pudiera suponer para los atletas.

ARTÍCULO 13. PREMIOS

Se establecen premios (trofeos) para los tres primeros de cada categoría.

ARTÍCULO 14. ACEPTACIÓN

Los participantes, por el hecho de inscribirse libre y voluntariamente, declaran conocer y aceptar plenamente el presente Reglamento. En caso de duda o de surgir alguna situación no reflejada en el mismo, prevalecerá lo que disponga al efecto la organización.

Por el sólo hecho de inscribirse, el participante declara que: “Me encuentro en estado de salud óptimo para participar en la III CARRERA RETODRAVET, POR EL SINDROME DRAVET – CARRERA POPULAR DE HORTALEZA”. Además, eximo de toda responsabilidad a la organización, patrocinadores u otras instituciones participantes ante cualquier accidente o lesión que pudiera sufrir antes, durante y/o después del evento, renunciando desde ya a cualquier acción legal en contra de cualquiera de dichas entidades.

Durante el desarrollo de la prueba contribuiré en lo posible con la organización, para evitar accidentes personales. De manera exclusiva, autorizo además a que la organización haga uso publicitario de fotos, vídeos y nombre en la clasificación de la prueba, en los medios de comunicación y/o Internet, sin esperar pago, compensación o retribución alguna por este concepto, con carácter atemporal.

Acepto igualmente la Política de Protección de Datos de Carácter Personal y Política de Privacidad«.

ARTÍCULO 16. RESPONSABILIDAD

Cada participante, en el momento de su participación en cada una de las pruebas, manifiesta encontrarse en una forma física y psíquica adecuada para afrontarlas y asume el riesgo derivado de la práctica deportiva.

La organización no se hace responsable de los daños, perjuicios o lesiones que los participantes puedan sufrir o causar a terceros, como tampoco de los gastos, deudas o daños que pudieran contraer durante el evento.

La organización, tiene suscrito un seguro de responsabilidad civil y otro de accidentes para todos los participantes debidamente inscritos que cubrirán las incidencias inherentes a la prueba. Quedan excluidos de la póliza los casos derivados de un padecimiento latente, inobservancia de las leyes, imprudencia, así como los producidos por desplazamiento a o desde el lugar en el que se desarrolla la prueba.

AVITUALLAMIENTO

Se habilitará un servicio de avituallamiento de agua en el kilómetro 5 para la distancia de 10 Km, y en la llegada a meta para todos los participantes.

RECLAMACIONES

Las reclamaciones relativas a la clasificación deberán realizarse a la Organización hasta 30 minutos después de la aparición de los resultados. Las decisiones del Comité Organizador, en relación a las reclamaciones planteadas, serán irrecurribles.

SERVICIOS

La Organización dispondrá de WC ecológicos.

GUARDARROPA

Habrá un sistema de guardarropía junto a la Salida/Meta, donde cada corredor podrá acercarse a dejar su bolsa, para que al finalizar la carrera pueda ponerse ropa seca rápidamente.

Recorrido

Es una prueba con un recorrido pensado para todos los corredores, con la posibilidad de hacer una marcha de 2 kilómetros o bien una carrera 5, 10 ó 15 kilómetros. Es una carrera de perfil medio-alto, así que recomendamos dosificar. La salida será en la Avenida de las Fuerzas Armadas, cerca de la Junta de Compensación de Valdebebas.

Inscripciones

Desde el 14 de diciembre hasta el 12 de marzo de 2026 a las 21:00 horas, o hasta agotar los 2000 dorsales disponibles para la carrera. El precio de cada modalidad es:

Prueba de 5k, 10k y 15k:

10 € hasta el 31/12/2025
11 € hasta el 31/01/2026
13 € hasta el 15/02/2025
15 € hasta el 12/03/2026 a las 21:00 horas

Marcha no competitiva:

9 € hasta el 31/12/2025
10 € hasta el 12/03/2026 a las 21:00 horas

Carreras Infantiles:

5 € hasta el 31/12/2025
6 € hasta el 12/03/2026 a las 21:00 horas

Para cuestiones relativas a inscripciones mandar un correo electrónico a [email protected].

En las pruebas infantiles, habrá 3 distancias no competitivas y medallas para todos.

CATEGORÍA AÑOS DISTANCIA
Niños acompañados cualquier edad 100 m
Benjamín 5-6 años 200 m
Alevín 7-8 años 400 m
Infantil a partir de 9 años 1.0 km

Fotos

A continuación puedes ver el enlace a las fotos tanto de la primera como de la segunda edición de la Carrera Solidaria RetoDravet, pero te dejamos directamente también las fotos de la III Carrera Solidaria RetoDravet

Clasificaciones

Te dejamos a continuación las clasificaciones de las diferentes pruebas de la III Carrera Solidaria RetoDravet:

👉 Clasificación 5K General
👉 Clasificación 10K Categorías
👉 Clasificación 15K General

Asimismo, te dejamos también las clasificaciones de las ediciones anteriores..

II Carrera Solidaria RetoDravet, celebrada el domingo 21 de septiembre de 2025:

👉 Clasificación 5K General
👉 Clasificación 5K Categorías
👉 Clasificación 10K General
👉 Clasificación 10K Categorías
👉 Clasificación 15K General
👉 Clasificación 15K Categorías

I Carrera Solidaria RetoDravet, celebrada el domingo 19 de mayo de 2024:

👉 Clasificación General 10 Km
👉 Clasificación General 5 Km

Conviértase en patrocinador

Como organización sin ánimo de lucro, dependemos de la generosidad de las empresas patrocinadoras para poder llevar a cabo nuestras actividades fundacionales.
Póngase en contacto con nosotros en [email protected] e infórmese de las diversas opciones de patrocinio.

Patrocinadores

¡En breve!

Contactar

Puedes escribir un correo electrónico a la dirección técnica de la carrera a [email protected], desde donde te atenderán lo más rápido posible.

Patrocinadores

¡Mil gracias a todas las entidades que han colaborado con la carrera!

¡Inscríbete ya!

No esperes más e inscríbete ya a la II Carrera RetoDravet, por el Síndrome de Dravet, la cual tendrá lugar el 21 de septiembre a partir de las 09.00 horas en Madrid.

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TERMS & CONDITIONS

The Dravet Syndrome Conference 2023 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Official College of Nursing of Madrid, at Avenida de Menéndez Pelayo, 93, 28007 Madrid, Spain, on Thursday 23rd of March 2023. Attendance to this conference is free of charge, but mandatory for organisational reasons.

Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not include travel and accommodation costs or any other personal expenses.

Admittance to the conference without registration cannot be granted.

Conference Attendance
Upon arrival at the Official College of Nursing of Madrid the day of the event, all participants have to check-in at the onsite Conference Registration Desk. The desk will open on 23rd of March at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks.

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days prior the event. Failure to attend the event without prior written notification by email may incur a no-show fee, which shall cover individual organizational, material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 16th of March 2023. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant. 

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.

TERMS & CONDITIONS

The European Dravet Syndrome Advanced Therapies (EDSAT) Meeting 2023 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Official College of Nursing of Madrid, at Avenida de Menéndez Pelayo, 93, 28007 Madrid, Spain, on Friday 24th of March 2023. Attendance to this conference is free of charge, but mandatory for organisational reasons.

Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not include travel and accommodation costs or any other personal expenses.

Admittance to the conference without registration cannot be granted.

Conference Attendance
Upon arrival at the Official College of Nursing of Madrid the day of the event, all participants have to check-in at the onsite Conference Registration Desk. The desk will open on 24th of March at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks.

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days prior the event. Failure to attend the event without prior written notification
by email may incur a no-show fee, which shall cover individual organizational, material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 17th of March 2023. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant.

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.

TERMS & CONDITIONS

The European Dravet Syndrome Advanced Therapies (EDSAT) Meeting 2022 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Illustrious Official College of Physicians of Madrid, at Calle de Santa Isabel, 51, 28012 Madrid, Spain, on Friday 1st of April 2022. Attendance to this conference is free of charge, but mandatory for organisational reasons. Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not comprise travelling and accommodation costs or any other personal expenses.

Admittance to the workshop without registration cannot be granted.

Conference Attendance
Upon arrival at the Illustrious Official College of Physicians of Madrid the day of the event, all participants have to register at the onsite Conference Registration Desk. The desk will open on 1st of April at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks.

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days
prior the event. Failure to attend the event without prior written notification
by email may incur a no-show fee, which shall cover individual organizational,
material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 24th of March 2022. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant.

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.

TERMS & CONDITIONS

The Dravet Syndrome Conference 2022 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Illustrious Official College of Physicians of Madrid, at Calle de Santa Isabel, 51, 28012 Madrid, Spain, on Thursday 31st of March 2022. Attendance to this conference is free of charge, but mandatory for organisational reasons. Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not include travel and accommodation costs or any other personal expenses.

Admittance to the conference without registration cannot be granted.

Conference Attendance
Upon arrival at the Illustrious Official College of Physicians of Madrid the day of the event, all participants have to register at the onsite Conference Registration Desk. The desk will open on 31st of March at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks. 

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days prior the event. Failure to attend the event without prior written notification by email may incur a no-show fee, which shall cover individual organizational, material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 24th of March 2022. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant. 

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.